What will the doctors find wrong this time? What is it that's been lurking undetected lo these many months? Fractures we never suspected? Dangerously bowed limbs? Limb length discrepancies? Other ailments my hypochondriac mind hasn't even dreamed up yet? Here we've been thinking they're fine, no OI-related problems -- things are tripping along nicely, thank you very much (as long as no one actually trips).
But since our last visit in April, both girls started crawling, then pulling up to stand, then cruising. Sophia had a bit of a fall. Both girls have bonked their heads and behinds countless times in the process of learning to stand. What damage has been done?
At our first Shriners Hospital visit, we didn't have this fear. We waltzed in with our miracle babies who survived a 10-week NICU stay and who, by golly, wouldn't be held down by this blasted OI. They're made of steel, I tell you! So we were not at all prepared to learn that, somehow, without us even suspecting it, both girls had broken several ribs. How does that happen? How does a baby who can't even roll over yet, whose parents have been trained to be so cautious they never pick her up by the midsection, how does this baby break -- not one -- but several ribs? And -- not one -- but two babies did it! How?
So, let me tell you, we lived with fear after that appointment. Every time we picked them up, we worried that we were breaking a bone. Every time they cried for no reason we could discern, we were sure they'd broken something. It was constantly in our thoughts. What's broken this time?
Turns out, nothing (as far as we know). Nothing has broken (as far as we know) since those ribs nearly a year ago. The girls sailed through their second Shriners Hospital visit six months ago with barely a comment from the doctors. They have survived all of the normal learning-to-be-a-toddler stages with no damage (as far as we know).
And yet, the fear is here to stay.

So, we'll find out tomorrow if the (as far as we know) becomes an (I can tell you for sure). We'll see if we can start the next six-month cycle with a cautious optimism instead of a petrified terror and guilt about a) having allowed them to break bones and b) not even knowing it, that's what bad parents we are.
Wish us luck.
4 comments:
(Kelly, Airan, Sophia and Evelyn)
I'll be sending warm fuzzies your way.
And, I can't let the hats slip by--my grandparents were into the shriner's, I have a picture of me, somewhere gathering dust, with one of those funky fezs. Maybe I'll dig it up.
Thanks, Nanette! Those warm fuzzies must have worked, because everything was just fine this morning. (More info here if you're curious.)
I am so happy to hear that! (Deja vu, in case you read all of your comments)
Hi Kelly & Airan,
Please be patient with me and my ineptness as a new "blogger"! I am still finding my way around your very interesting and informative blog pages.
Just came across the report of the hospital visit with the girls and wanted to say that we are so grateful for that good report! I had found your notes on the concerns you expressed prior to the visit. I was awaiting the report and finally came across your review of the six-month exam! Wonderful news and of special encouragement to both of you as well as your concerned loved-ones. Hope you won't mind my saying that the good news was especially affirming to your Grandpa and Grandma. Without appology we took it as a confirmation that our daily prayers for you, Sophie and Evie were being heard and answered. Whether it is "warm fussies" or prayers that are being effective we will leave to your determination. As for us we take comfort and believe wholeheartedly in the later. So, if you don't mind we will keep on praying!
Love you guys...
Gramps
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